It can be all consuming trying to keep Nolan safe. At times it feels like we always have a hand on him to prevent a seizure with a hard fall or a hand out to help cushion a fall onto a hard surface from a seizure. Being there all the time is just not realistic. Early on in Nolan’s journey we realized that we needed another “hand.”
That is why we created Allhands Life….to be the extra set of “hands” for caregivers and those living with epilepsy. We are nearing the final stages of our protective mat to help cushion sudden seizures onto hard surfaces, but a product is only part of our mission. We want to create a community to share the good and the bad, the laughs and the tears, the struggles and the solutions. No one should have to go through this alone. And sometimes just hearing what others are going through can help make you feel a little less alone. It can also help pull you out of a funk and realize you are going to keep fighting! I’ve been on both side of these scenarios. Having a little hope that what worked for someone else may work for your child, or hearing “you got this!” can do wonders for your spirit!
So with that, I will be going way outside of my comfort zone and begin blogging about our life with epilepsy. The real stuff. It is not always easy to share what is really going on day to day with with Nolan and the struggles he endures. Sometimes it is just easier to highlight the good days and move on, but I’ve realized that just doesn’t help anyone understand what he (and we) go through.
Feel free to chime in if you or a family member are also battling against the beast that is epilepsy. I promise you are not alone. We’ve got this!!
